Treacher Collins Syndome Archives

Masks For All… including those who do not have ears…

Several people asked if I plan to make and sell face masks. The answer is no, sorry. There are lots of mamas who have lost …

I thought I’d share some of our favorite books about hearing aids, some which include facial abnormalities as well. And by “favorite” I mean, these …

PipSqueak and I were sitting in the front row at church, because we like to watch the Sign Language interpreter and learn ASL. A young …

When did your child first notice that they are “different”? I have heard stories of that moment when a child asks about their own little …

Recently I came across this post which was shared on Facebook: 146 comments. Everything from people making a pun about ears, to angry parents whose …

14 years ago, a little boy named Drew was born. Drew had conductive hearing loss and needed to wear a Bone Anchored Hearing Aid (BAHA). …

One of the reasons we choose the Oticon Ponto hearing aid, is it has less issues with feedback squeals. But my daughter’s Ponto still did …

We had such a wonderful time this past weekend at Hands & Voices Family Camp. We arrived early, so my husband and one of the …

When my second daughter was diagnosed with hearing loss, I had no idea the crazy adventure ahead of us. All I knew was, I had …

It was the last week of June, when PipSqueak tried to jump off her nightstand and broke her leg. When I was a child, I …