I thought I’d share some of our favorite books about hearing aids, some which include facial abnormalities as well. And by “favorite” I mean, these are the books we own and have read. There are books not included in this list, simply because I haven’t discovered nor read them yet.
I’m going to start with the youngest age and go up. I also include our amazon affiliate links. So if you chose to purchase using that link, Amazon will pay me very tiny commission for sharing these amazing books with you!
First is “Gracie’s Ears” https://amzn.to/2H9490C
It’s a hard-cover book with about 20 pages. It is a perfect little bed-time story for my preschooler, and my first grader can read this book all by herself. Each page has pictures and the whole story flows nicely with rhymes.
“When Gracie wakes up, she wiggles her toes.
She looks with eyes. She smells with her nose.
But Gracie’s ears are sleeping…”
Then when Gracie gets hearing aids, suddenly her ears are awake!
Last night, when I tucked my 4 year old daughter in bed, she handed me her hearing aids and said, “now my ears are sleeping, and my whole body will be sleeping soon too!” I love that language. It is way better than saying, her ears are “broken” and hearing aids “fix” them. Nope, her ears are just sleeping.
Next is El Deafo. https://amzn.to/39oLvy2
It’s the size of a novel, but written as a comic book, so very fun and easy to read. Cece gives the reader an inside experience to life with hearing aids. When her hearing aid batteries are dying, the text begins to fade. If a character has his back turned, the text is jumbled and harder to decipher. Her teacher uses a microphone which sends her voice directly to Cece’s hearing aids in an extra-large easy-to-read font.
This book is 3-7th grade reading level, but I’m not sure at what age I’ll let my girls read this book, because…
- In the book, Cece is embarrassed to wear her giant back-pack style hearing aid at school. Then it gets broken and she has to survive a month without it, and she realizes how amazing it is. But currently my daughter is Not embarrassed by her hearing aids, so I don’t want to give her that idea. But if/when my daughter is struggling with wanting to wear her hearing aids, then I’ll let her read this book.
- Also at one point in the book Cece has a crush on a boy at school. So again, not an idea I want to introduce until my daughter is already at that stage, which is hopefully never, but that’s probably unrealistic…
I, as a Mama, throughly enjoyed reading this book, and now I’m curious to go read “Diary of a Wimpy Kid,” because I’m probably not too old to enjoy that, right?
Now Hear This https://amzn.to/38gTRaw
I just pre-ordered this book, but it’s not published yet (as of Feb 2020). I’ll say more after I see and read it.
I did chat with the author and she said, “We wrote it for kids to “grow” into. First, being read to and then reading on their own. My daughter Harper always had a love of reading, so she wanted it to be “rich” with language! We love words. But we also worked with the amazing Priscila Soares – My Luckyears to create illustrations that visually support the story and Harper’s voice. They turned out so amazing! They capture the essence of Harper!”
I’m pretty sure everyone already knows about the book Wonder (or the movie). https://amzn.to/39oUe3d It is required reading for 4-5 graders at schools across the USA.
Wonder is about a boy, Augie who has craniofacial syndrome, and wears BAHA hearing aids (although the movie leaves that part out).
This book has been life-changing for people, like my husband and our daughter, who have craniofacial abnormalities. People used to stare or ask rude questions, “what’s wrong with your face?” But now we can break the ice by asking them, “have you seen the movie Wonder? My husband and our daughter have the same syndrome as Auggie.” Pretty much any 4-7 grader will respond, “No way! That’s so cool!” Of course adults realize it’s actually not that “cool” but they at least they have some context and know everyone looks different, and we are all wonders!
Normal https://amzn.to/2Suw40i i
These two books were just published (in 2020) and written by a mother, Magdalena, and her teenage son, Nathaniel. He has the same crainofacial syndrome as Auggie, my husband, and our daughter. I bought and read both books. I read the Magdalena’s first which has some comments from her son mixed in. After that, reading the kid’s version just felt like a summary with less details. If you’re going to read both, I think start with the kid’s book.
Do we need to buy both books? Well, my children will read the kid’s book, when they’re old enough. But as a mom, I enjoyed reading a mom’s perspective, it was very insightful into the reality of life with a crainofacial syndrome with all the challenges and surgeries. I am incredibly grateful that my husband and our daughter are not effected as severally as Nathaniel. Had I read this when my daughter was newborn, it would have been insightful to the road ahead of us and the potential challenges.
Diary of a Beautiful Disaster https://amzn.to/2uw6boR
Written by a lady who has that same crainofacial syndrome. I read it 2 years ago now, so my memory of it is a bit fuzzy. It’s her story of challenges, surgeries, trying to make herself beautiful, and then learning to love herself and see herself as beautiful just the way she is. She had some traumatic surgery experiences which sounded so awful and made me want to avoid surgery at all costs (unless it’s a matter of life or death). I recommend waiting to read this book until you (or your child) have made it past the necessary surgeries and are trying to decide if you want to do cosmetic surgeries.
As a Mama, this book made me realize how import it is for my daughter to know that she is loved and accepted and beautiful just the way she is.
That’s all I have for now, but as I find and read more books, I’ll add them to this list. And if you have any book recommendations, let me know what I should read next!