What if childen learned Compassion before the world teaches Comparison? In a world that ranks kids by grades, likes, and labels…Compassionate Friends whispers a different truth. Every child deserves to know they are loved.Not because of what they do, but because of who they are. Compassionate Friends helps families, teachers and therapists, start conversations about differences, …
“My Grandson has Treacher Collins Syndrome.” I froze in my tracks and turned to face the woman who was speaking. “My daughter has Treacher Collins Syndrome too!” I said, surprised to meet someone who had heard of such a rare facial syndrome. My daughter’s theatre group had just finished their first performance. She plays the …
WonderfullyMeBooks.com April 2018, I purchased A Beautiful Girl at a little local bookstore. Our girls loved the book! They enjoyed looking at pictures of cute little girls who each have different colors of hair, eyes, skin, as well as different personalities. My girls would say, “I am this girl!” and “you’re that girl,” and “this …
Several people asked if I plan to make and sell face masks. The answer is no, sorry. There are lots of mamas who have lost their jobs, and kids who are home from school, and they are stepping into entrepreneurship and launching their own businesses making and selling face masks. How cool is that? So …
Masks For All… including those who do not have ears… Read More »
I thought I’d share some of our favorite books about hearing aids, some which include facial abnormalities as well. And by “favorite” I mean, these are the books we own and have read. There are books not included in this list, simply because I haven’t discovered nor read them yet. I’m going to start with …
PipSqueak and I were sitting in the front row at church, because we like to watch the Sign Language interpreter and learn ASL. A young lady (probably early 20s), was sitting behind us and said to me, “your daughter is so cute.” Thank you! The lady continued, asking, “what is her name?” …and… “oh, that’s …
When did your child first notice that they are “different”? I have heard stories of that moment when a child asks about their own little ears or wonders, “why do I have a hearing aid?” I have been waiting to see if my own daughter will even needs to ask. Our family is unique in …
Recently I came across this post which was shared on Facebook: 146 comments. Everything from people making a pun about ears, to angry parents whose children who born without an ear. You can read all the comments here: https://www.facebook.com/260234427427165/posts/2296682540449000 My husband has 2 prosthetic ears Actually he has 4 prosthetic ears, but the one pair …
14 years ago, a little boy named Drew was born. Drew had conductive hearing loss and needed to wear a Bone Anchored Hearing Aid (BAHA). His BAHA was held on by a softband headband. When he was a baby, the softband kept slipping off and was drawing attention to his lack of ears and to …
Connect your Ponto or Baha to custom softbands and hats Read More »
One of the reasons we choose the Oticon Ponto hearing aid, is it has less issues with feedback squeals. But my daughter’s Ponto still did squeal a bit. Friends shared videos of their children wearing a hat over their BAHS and no squealing. But my daughter’s Ponto’s squealed. Other families said their Ponto’s squeal more …
