My husband and second our daughter, were born with Treacher Collins Syndrome, which effects the development of facial bones. That can cause problems with one’s ability to breath, eat, and hear. Somehow our daughter passed her newborn hearing test. But later, we discovered she has no ear drum in her right ear. At that point …
PipSqueak was playing happily with her sister, when suddenly she tripped on a toy, and fell on her face. Bursting into tears, she ran to me, “Ma, ma, ma, ma.” She reached up, asking me to hold her. I picked her up and she laid her head on my shoulder. Just kidding, comforting PipSqueak isn’t that …
Our family and headbands don’t mix well. Headbands are always sliding off our heads! The only time I could keep one on, was when I had dreadlocks. Little Baldi-locks will not be getting dreads any time soon. But deep down inside, I think she wants to be a hippie, because these things are probably genetic. One …
PipSqueak has a Bone Anchored Hearing Aid (BAHA). Her hearing aid is held on by a headband called a soft band. It is dark blue and rather boring. I could buy a second headband in a different color. But the hearing aid company charges at least $60. Outrageously overpriced for a simple little headband! There’s another company which …
After PipSqueak got her hearing aid, I was nervous about her wearing it at Church. It is a large group of people and there is loud music. I thought she would be overwhelmed and freak out. Surprisingly, she was fine. Sunday night, I dropped her off in the nursery. I had taken her hearing aid off …
I acquired a collection of headbands back when Monkey was a baby. I also made lots of bows to clip on her headbands. I went a little overboard and made 2 of every color/pattern. I could have attached the bows to the headbands, but I preferred to mix-n-match, as well as have the option of …
Baby PipSqueak had lots of headbands. I wanted her to get used to wearing them, just in case she needed a hearing aid. People with Treacher-Collins Syndrome, usually have hearing loss too. Babies wear hearing aids on a headband called a “soft band.” When PipSqueak was a newborn, I won a very cute headband from a lady doing a …
When was I first attracted to Duane? Was our walk in the woods with Josiah discussing the upcoming school we were running? Or the hike to the cross with some friends? Was it when I bought beads at Portland’s hippie market and Duane helped put them in my dreads? Or when a kid from NYC gave me …
Recently a sweet little boy asked, “why does her face look funny?” I knew soon enough someone would ask, but I hadn’t thought about what I would say. I fumbled something about missing cheek bones, just like her Daddy, and called my husband over to show his fake ears to the boy. The boys was, as …
