“My Grandson has Treacher Collins Syndrome.” I froze in my tracks and turned to face the woman who was speaking. “My daughter has Treacher Collins Syndrome too!” I said, surprised to meet someone who had heard of such a rare facial syndrome. My daughter’s theatre group had just finished their first performance. She plays the …
Our dog loves fresh food! Seriously, can you imagine eating only cereal every day for your entire life? Talk about boring! Not only is fresh food a better quality and better for your dogs health, it’s also shipped to your door! Though a simple on-line subscription which is easy to manage, choose your shipping date, …
An honest review from an unbiased customer… At 16 years old, Duane Zingale was the first child in the USA to have a post implanted in his scull to hold a Bone Anchored Hearing Aid (BAHA). He has bilateral hearing loss, but back then insurance and the FDA only approved one hearing device, so at …
Cochlear Baha Sucks. Choose Oticon Ponto instead! Read More »
Normally I am at least a little stressed out getting my own car to go anywhere outside of my normal routine. But I just realized I spent the past week going tp 7 different car dealers, test-driving multiple cars, choosing random routes to drive, all while holding a conversation with the salesman (impressive multi-tasking) who …
WonderfullyMeBooks.com April 2018, I purchased A Beautiful Girl at a little local bookstore. Our girls loved the book! They enjoyed looking at pictures of cute little girls who each have different colors of hair, eyes, skin, as well as different personalities. My girls would say, “I am this girl!” and “you’re that girl,” and “this …
Several people asked if I plan to make and sell face masks. The answer is no, sorry. There are lots of mamas who have lost their jobs, and kids who are home from school, and they are stepping into entrepreneurship and launching their own businesses making and selling face masks. How cool is that? So …
Masks For All… including those who do not have ears… Read More »
I thought I’d share some of our favorite books about hearing aids, some which include facial abnormalities as well. And by “favorite” I mean, these are the books we own and have read. There are books not included in this list, simply because I haven’t discovered nor read them yet. I’m going to start with …
PipSqueak and I were sitting in the front row at church, because we like to watch the Sign Language interpreter and learn ASL. A young lady (probably early 20s), was sitting behind us and said to me, “your daughter is so cute.” Thank you! The lady continued, asking, “what is her name?” …and… “oh, that’s …
When did your child first notice that they are “different”? I have heard stories of that moment when a child asks about their own little ears or wonders, “why do I have a hearing aid?” I have been waiting to see if my own daughter will even needs to ask. Our family is unique in …
Recently I came across this post which was shared on Facebook: 146 comments. Everything from people making a pun about ears, to angry parents whose children who born without an ear. You can read all the comments here: https://www.facebook.com/260234427427165/posts/2296682540449000 My husband has 2 prosthetic ears Actually he has 4 prosthetic ears, but the one pair …
