Baby PipSqueak had lots of headbands. I wanted her to get used to wearing them, just in case she needed a hearing aid. People with Treacher-Collins Syndrome, usually have hearing loss too. Babies wear hearing aids on a headband called a “soft band.”

Recently, the ENT looked in PipSqueak’s ears and discovered she does not have an eardrum in her right ear. It’s a miracle PipSqueak was able to pass her newborn hearing test without an eardrum. Her hearing loss seems minor, none-the-less it’s obvious she does need a hearing aid.
The hospital gave us a bone anchored hearing aid (BAHA) to borrow until we get our own. Her hearing aid was on a light brown soft-band, which is adjustable to fit any size head. For a boy who needs a BAHA, they pick a headband color which matches the child’s hair, to hide the headband. But I have a girl. If she is going to wear a headband, may I please have one which does not look like a bra strap? I asked if there were other color options, and was given a blue headband instead.

So I contacted the local headband lady and shared my plan to make my own headbands to hold my daughter’s hearing aid. I’m not sure what I hoped to accomplish by telling a headband sales person that I was going to make my own headbands. But she responded, encouraging me to do so. She also told me, she was no longer selling headbands and had just listed all of her craft supplies for sale. Her prices were way lower than wholesale prices. What??!! Talk about favor!
It was a killer deal, so of course I bought lots of elastic and flowers from her! Let the headband making begin! Actually I still have to wait for the rest of my supplies to come in the mail. That could take forever, with our current weather conditions. So instead of making headbands, I’m just writing blogs about headbands.
Monkey is very excited too! She said: Mama, now you can be the Headband Lady, and I will be the Watching Lady. PipSqueak can be the Napping Lady, and what kind of Lady will Dada be?



